Monday, January 14, 2019

Webinar: Advocate's Role in Responding to Consumer's Needs and Wants


Speaker: Ferial Maghami, BCPA, BSRN, CCM. Webinar discusses linking what consumers want from a patient advocate to ways advocates could better sharpen their skills by directing them to fit consumer needs while adhering to the ethical standards.


 Program Objectives:
1.  As an advocate, be prepared for the customer's needs and wants
2.  Improve advocacy skills to respond to the customer
3.  Adhere to ethical standards while servicing the customer
Ferial Maghami, BCPA, BSRN, CCM
Ferial Maghami has been a Private Patient Advocate since 2016. She is the Principal at PRIVATE PATIENT ADVOCATE, www.managehealthinsurance.com/our-services, a health care advocacy practice, offering consumers services to navigate the complex health care and health insurance systems.

Ferial has a strong passion for helping healthcare consumers to better understand and engage in the management of their health care, by providing guidance, simple education, and necessary support.

As a practicing nurse, Ferial was a Critical Care and Trauma nurse. Additionally, she has over 30 years of experience working as a health care executive for major health insurance companies including Blue Cross Anthem, PacifiCare/United HealthCare, and Kaiser Foundation Health Plan. In addition,she has held leadership positions with two major provider organizations in Los Angeles and Orange Counties: AltaMed and Monarch Health Care. She is skilled in negotiations of complex provider contracts as well as development and execution of techniques and methodologies to effectively manage health care cost and utilization.
 

In her role as an advocate, Ferial provides services to individuals and families with health care related needs to support and manage most aspects of their health care and health insurance.

Ferial holds Bachelor degrees in Nursing and in Health Administration and certificates as a Board Certified Patient Advocate, executive leadership and Case Management.  Ferial has served as an Examiner on the Malcolm Baldrige National Quality Program, Board of Examiners.

Monday, November 26, 2018

Webinar: Music Therapy Intervention with MusiCure – Music as Medicine


Speaker: Anne Taylor

Anne Taylor, RN, BSN is the CEO & Founder of Scandic Health

Wellbeing is something we all strive to achieve. This is especially true for patients, caregivers and all members of the healthcare team. Today there are technologies in place that can be used to reduce stress, anxiety and fear. This webinar will demonstrate the evidence-based science around MusiCure – music as medicine and how it can assist patient advocates and consumers in their daily lives. Anne will tell her story as an RN, mother and now advocate for mental health. The participants will come away with tools, ideas and hope. A point about the importance of self- care for caretakers and advocates will be highlighted.

Program Objectives:
  1. The focus will be on my story how I went from a mom and nurse to a mental health advocate. The goal will be to share my story and to create a light for others to see. Advocacy comes from personal experiences and its stories from the trenches that create change, create support and create hope for recovery.
  2. The participants will gain knowledge of evidence-based music intervention and a detailed overview of the science behind MusiCure – music as medicine will be taught, the focus will be on the application of MusiCure – music as medicine within the healthcare sector but also privately. I will focus on the importance of a healing sound environment both for patients and their advocates to improve recovery.
Anne Taylor’s mental health challenges in her family pushed her into advocacy. In recovery she was introduced to the evidence-based MusiCure – music as medicine as a way to calm the mind. She promotes a calming sound environment in healthcare to lower anxiety and improve patient’s mental health. Anne has been interviewed for podcasts about mental health and entrepreneurship. She has contributed with articles to ThisIsMyBrave.org and Ecophon.com about mental health and the importance of a healing sound environment in healthcare. Anne is born in Copenhagen, Denmark and an RN, BSN living with her family in Northern Virginia.

Wednesday, October 31, 2018

Webinar: A Revolution in Musculoskeletal Care

Speaker: Dr. Ronald Donelson

Credible data documents that the care of musculoskeletal pain, including low back (LBP) and neck pain (NP), has been worsening with more people suffering from chronic pain, more drugs being dispensed, more injections, and unnecessary surgeries. The results are not positive. With current conventional treatment, we have more people with disabilities and spiraling healthcare costs. Today, there is equally credible data that documents that a highly innovative clinical assessment identifies characteristics of each patient’s condition that also identifies standardized, predictably-effective self-treatment that produces rapid, easy, risk-free, inexpensive recoveries for 80-90% of patients. This session will explain the evidence and assist patient advocates and consumers in understanding better options when dealing with acute and chronic LBP and NP.

Ronald Donelson, MD, MS, DipMDT, is a board-certified orthopedic surgeon who specializes in and has researched non-operative spine care for 30 years. He is Founder/President of SelfCare First, an organization that seeks to globally improve the value of spinal/musculoskeletal care. Dr. Donelson has published numerous research studies, chapters, review articles, and two books on the topic: “Rapidly Reversible Low Back Pain: An Evidence-Based Pathway to Widespread Recoveries and Cost Saving” and “Solving the Mystery: The Key to Rapid Recoveries for Most Back and Neck Pain”


Click here to play webinar

Friday, June 22, 2018

A Week in the Life of a Palliative Care Doctor: What we really do

Speaker: Dr. Gary Pasternak - 

Dr. Gary Pasternak is medical director at Mission Hospice and Home Care and co-director of the Mission House, a residential hospice home in San Mateo, CA. He is board certified in hospice and palliative medicine and internal medicine. He completed a palliative care fellowship at the San Diego Hospice in 2010 and has been practicing palliative care full time with Mission Hospice since then. He assisted in the design and implementation of Mission’s policy regarding physician assisted dying as well as Mission’s partnership with Stanford University in teaching palliative/hospice care in the home and at Mission House. He completed chaplaincy training at the Chaplaincy Institute in Berkeley in 2008 and enjoys working with hospice multidisciplinary teams.



Thursday, October 23, 2014

Hospital Drift

Speaker: Lisa Berry Blackstock - 

During this session Lisa Berry Blackstock addressed the prevalence of "hospital drift" within the hospital setting where fragmented care and miscommunications are serious hazards for all patients’ safety.
  • Hospital drift occurs when hospital personnel deviate from standard, proven protocol.
  • Consequences can range from mild (infection) to serious (Ebola.)
Tips for advocates on how best to provide hospital bedside and discharge services to improve care and eliminate errors.

Lisa Berry Blackstock is the Founder and Owner of Soul Sherpa, a company devoted to comprehensive patient advocacy and personal life care protection.

Lisa Berry Blackstock has worked in the field of patient advocacy as an adjunct to estate and life care planning since 1990. A survivor of an originally misdiagnosed nerve disorder, trigeminal neuralgia, which required major brain surgery in 2007 to restore her to health, Lisa believes in the power of patient advocacy not only for herself, but for every person. After recovering from her health crisis, Lisa became more focused to advocate and educate, believing the movement of patient advocacy has just begun and has a bright, strong future.

Tuesday, September 30, 2014

Patient Safety - Protect, Prevent, Prepare

Speaker: Jean Rexford -  

Jean Rexford is the executive director of the CT Center for Patient Safety.

Since 2004, the mission of the CT Center for Patient Safety has been to improve the quality of care provided to patients by promoting attention to safety, patients’ rights and the centrality of the patient’s voice. Ms. Rexford also sits on a number of national committees including the National Advisory Council of AHRQ and Consumers Union Safe Patient Project among others.

The CT Center offers programs to nursing and medical schools on the experience of the patient and the importance of patient engagement and involvement in assuring quality care. She is a frequent national panelist representing the patient voice.

You may download the presentation slides for this event, provided by the speaker.

During this teleconference session Jean Rexford addressed the following topics:

Protect
  • What are the biggest safety issues?
  • How frequently do they occur.
Prevent
  • How can you reduce your chances of becoming a statistic?
Prepare
  • How can you help your doctor find time to discuss what is important to you and share in your healthcare decisions?
CLICK to play the podcast

Sunday, August 31, 2014

Networking for the Non-Social: Building a professional network in person and online


Speaker: Casey Quinlan - 

Casey Quinlan gave herself the title “Mighty Mouth” on the theory that if you can’t hide it, hang a flag on it.

After getting a breast cancer diagnosis just days before Christmas in 2007, she wrote the Amazon best seller Cancer for Christmas: Making the Most of a Daunting Gift, which tells her story of managing medical care and exhorts everyone to become their own patient advocate.

She’s a member of the Society for Participatory Medicine, produces audio and video content for the Society of Hospital Medicine’s The Hospitalist Magazine, and is one of the Disruptive Women in Health Care, an online community of women dedicated to serving as a platform for provocative ideas, thoughts, and solutions in health and medicine. She has also been named an ePatient Scholar to MedicineX 2013 at Stanford University, and is a member of a federal workgroup on consumer engagement and health IT.

Casey is a former network news field producer who helped cover breaking news across the globe for over two decades, learning all about what makes a great story. She talked her way out of police custody in Saudi Arabia, and did standup comedy in New York for several years – “fear” is not a word in her dictionary.

Handouts and Worksheets

Monday, June 30, 2014

Caring From a Distance – Tools to Help Long-Distance Caregivers


Speaker: Nora Jean Levin - 

Nora Jean Levin has been Executive Director of Caring from a Distance since 2004, when the position was created. She is responsible for the organization's website, designed with assistance from a team of long distance caregiver advisors, and powered by CFAD's award-winning technology partner, Trilogy Integrated Resources. With strategic community partners, she created the pilot on-line Metro D.C service directory, forging agreement between CFAD, the Guide to the Retirement Living and the Jewish Council for the Aging Senior Helpline. In 2009, responding to a initiative suggested by two families, Levin spear-headed CFAD's Caregiver Award Program using YouTube and a Caring from a Distance Channel as a unique platform to increase public awareness of the important role of caregiving.

The author of "How to Care for Your Parents: A Practical Guide to Eldercare" (4th edition), WW Norton (1997), Levin has written, spoken and consulted on eldercare issues for almost 25 years. In 2001, she was nominated for the Rosalynn Carter Caregiving Award as an "exceptional eldercare pioneer and consumer advocate for contributions focusing on family needs for better access to eldercare information and services."

Ms. Levin describes the tools available through “Caring from a Distance” to help families organize care for their loved one, including checklists, a library, and new technology tools that make information available to caregivers, medical staff and family members. In this session, we explored various scenarios that families frequently confront and solutions to manage the challenges.

Presentation Links (*some links no longer available)

Saturday, May 31, 2014

Knocking on Heaven’s Door: the Path to a Better Way of Death


Speaker: Katy Butler - 

Katy Butler's memoir, "Knocking on Heaven's Door", was named "One of the Ten Best Memoirs of 2013" by Publishers Weekly as well as one of the “100 Notable Books of 2013” by the New York Times. It most recently won the “Books for A Better Life Award”

Her memoir chronicles the last 8 years of her parents' lives, as Katy was her parents' part-time caregiver and full-time medical advocate. Her ground breaking book explores her struggle to allow her parents the "Good Deaths" they wanted, and the forces within medicine that stood in the way. Its provocative thesis is that modern medicine, in its quest for maximum longevity, often creates more suffering than it prevents.

Her many essays and articles, often blending memoir and investigative reporting, have appeared in The Wall Street Journal, The New Yorker, The New York Times Magazine, Best American Essays, Best American Science Writing, and Best Buddhist Writing.

Accompanying presentation slides (10 MB PDF)

Monday, March 31, 2014

What Health Advocates Need to Know about Improving Care and Expanding Choices at End of Life

Speaker: David C. Leven - 

Since 2002, David C. Leven has been the executive director of Compassion & Choices of New York, an organization working to improve care and expand choices at end-of-life. He is a graduate of the University of Rochester and Syracuse University College of Law. An advocate for patients and an expert on advance care planning, patient rights, palliative care, and end-of-life issues, Mr. Leven plays a leadership role in having healthcare legislation introduced and enacted in New York. Improvements in pain management and palliative care options have resulted from Mr. Leven's legislative work, as well as an increase in the numbers of people with completed healthcare proxies.

Mr. Leven lectures frequently to diverse professional groups, students, and citizens of all ages. He is also a regular guest lecturer at College of New Rochelle School of Nursing and Fordham Graduate School of Social Service.

A component of NAHAC’s mission is to support public education and foster effective self-advocacy. During this teleconference Mr. Leven will covers the following topics:
  • The fundamentals of advance care planning
  • Protecting patient autonomy at end of life
  • Palliative care and end-of-life issues

Friday, February 28, 2014

What Health Advocates Need to Know About Conservatorships

Speaker: Melinda Hunsaker -

Melinda Hunsaker is a Managing Partner at McGonigle & Hunsaker, LLP. Her practice includes Medi-Cal Planning, Applications, and Appeals, Estate Planning and Trust Administration, including Special Needs Trusts, Probate, Conservatorships, Guardianships, and other Elder Law related matters. Ms. Hunsaker received her law degree from Western State University, College of Law, graduating cum laude in December of 2005, and was admitted to the California State Bar in May of 2006.

Ms. Hunsaker is a member of the Orange County Bar Association (OCBA) Trust & Estates section and the OCBA Elder Law section, as well as a member of the J. Reuben Clark Law Society. Ms. Hunsaker is a regular presenter at "Transition Night" for the North Orange County Community College District, School of Continuing Education, for the developmentally disabled and their families. Ms. Hunsaker is also a regular volunteer at the Orange County Probate Court's free Limited Conservatorship Clinic and has been published in the Orange County Lawyer. Ms. Hunsaker frequently gives presentations throughout Southern California to churches, schools and community organizations for seniors, people with special needs, and their families as well as provide training to attorneys and other professionals, hospitals, and skilled nursing facilities.

Ms. Hunsaker’s article that published in the Orange County Lawyer on this topic.

A component of NAHAC’s mission is to support public education and foster effective self-advocacy. During this teleconference session Ms. Hunsaker covered the following topics:
  • The fundamentals about how conservators work
  • How to recognize when conservatorship may be needed
  • Communication tips for addressing this topic with clients

Friday, January 31, 2014

Aging in Place and the Village Movement

Speaker: Lois Steinberg - 

Lois Steinberg is the president and co-founder of the Center for Aging in Place, an affiliate of the Village to Village network, which is expanding the "Village Movement" throughout Westchester County in New York. She is the founding director of the Medicare Rights Center's Westchester programs where she conducted the award-winning Seniors Out Speaking on Medicare (SOS Medicare) program. Her previous careers include policy and marketing research, public relations, and educational advocacy.

 A component of NAHAC’s mission is to support public education and foster effective self-advocacy.   During this teleconference session Lois addressed the following topics:

  • The Aging in Place, Village to Village movement is an emerging and popular grassroots development to help those who wish to remain in their homes as they age.
  • Each "village" determines the services to be offered, structuring membership dues accordingly.
  • Active, committed volunteers are key to the success of aging-in-place. Transportation service is nearly always a priority, and one with which volunteers can provide much support.
  • Established villages have learned that they need an administrative director, at least on a part-time basis.
  • The aging-in-place movement represents significant growth potential for healthcare advocates.

Tuesday, December 31, 2013

Women's Health Series Part 2: Menopause

Speaker: Sima Kahn, MD -

Sima Kahn, a Certified Menopause Practitioner, has always been a passionate advocate for her patients and founded Healthcare Advocacy Partners in 2009 to fill a critical gap in the healthcare system. After almost 25 years of Obstetrics and Gynecology practice, Sima’s breadth of clinical experience has given her a deep understanding of the complexities of the medical system and the overwhelming confusion patients often feel when faced with significant health situations.

A component of NAHAC’s mission is to support public education and foster effective self-advocacy.  During this teleconference session Terry will address the following topics:
  • Dr. Kahn explains the biology of menopause, discuss symptoms, review the latest findings on the use of hormone therapy and offer suggestions to manage this stage of life.
  • This session will educate you more fully on this important women’s health issue and help you to communicate better with doctors about symptoms and treatment options.

Help is a Four-Legged Word™

Speaker: Becky Miller -

Canine Companions for Independence® (CCI) provides highly-trained assistance dogs for children and adults with disabilities, free of charge. The most advanced technology capable of transforming the lives of people with disabilities has a cold nose and a warm heart!”

Becky Miller is an Instructor for Canine Companions for Independence. She has been training service dogs for people with disabilities with the organization for 6 1/2 years. She has always had a deep passion for working with animals and holds a Bachelor's of Science degree in psychology with an emphasis in animal behavior from St. Mary's College of California. She is currently enrolled in veterinary technician school and holds a position on the Board of Directors for Zoofari Inc, an animal conservation/education non-profit.

Points covered include:
  • The breeding, puppy raising, and final training of the dogs
  • The application process for those seeking a canine companion.
  • The types of assistance the dogs provide
  • Outreach to Veterans
  • Prison puppy raising programs
Additional Resources

Thursday, October 31, 2013

An Overview of the California system of providing for the needs of persons with developmental disabilities

Speaker: Terry DeBell, R.N. -

Terry DeBell, a registered nurse for more than 40 years, currently serves on the boards of several organizations involved in services for people with developmental disabilities.  She also serves on a Governor’s Advisory Board and frequently gives testimony to the California Legislature.  Her primary focus is on those with a severe or profound disability who are presently served in two of California's Developmental Centers.  She is closely involved with the closure of one other Developmental Center, working with other families, the Department of Developmental Services, and Regional Centers to ensure that the residents are able to transition to a non-DC community setting safely and successfully.

A component of NAHAC’s mission is to support public education and foster effective self-advocacy. During this teleconference session Terry will address the following topics:
  • An historical perspective on the treatment of people with disabilities, from ancient times to the present.  Attitudes from Greek and Roman philosophers, major world religions and science have shaped a cultural perception of disability that is, on the one hand quite negative, but on the other hand very person-centered.
  • The effects of the Lanterman Act which requires provision of  social services for every person with developmental disabilities in the State of California; the Supreme Court decision ruling in favor of the Olmstead Act which guarantees that people with developmental disabilities have the right to live in the “least restrictive” environment.
  • The complicated and, at times, divisive process of moving residents from large developmental centers to community based services.

Monday, September 30, 2013

The Keys to Health Care Advocacy for Persons with Developmental Disabilities

Speaker: Cecelia Ramsey -

Cecelia Ramsey, Executive Director of the Developmental Services Continuum, Inc. (DSC), became a passionate advocate for person with developmental disabilities through the lifelong influence of her brother Patrick, a gentle soul who passed away in 2001. She began her career as a Psychiatric Technician, working in three California Developmental Centers over 10 years.  She later moved into community based care, serving in steadily advancing positions at service provider organizations in San Diego County.  Before her current position of Executive Director at DSC she served as Director of Consumer Affairs for the organization.  She continues to serve as an Instructor in the Certified Direct Support Professional program through the San Diego County Office of Education.

During this teleconference session Cecilia covered:
  • Barriers to health care in the age of managed care
  • Chronic medical and behavioral concerns
  • Navigating the terrain of health providers “capacity” perceptions
  • Teaching support personnel how to be an advocate for the people they serve

Wednesday, July 31, 2013

Primary Veteran Diagnosis: PTSD/Moral Injury, Traumatic Brain Injury, Veteran as an Important Piece of Patient History


Speakers: Alice Herb, JD, LL.M & Dave Eling -

Alice Herb, JD, LL.M & Dave ElingDirector of the West Michigan Veterans Service Center; Director of the Muskegon Veterans Administration

Dave Eling is a Muskegon native; graduated Muskegon High School 1967; entered US Air Force January 1968 retired February 1988; Hired as Director West Michigan Veterans Service Center 1990; Instrumental in the formation of West Michigan Veterans, Inc. in 1992 and the Muskegon County Department of Veterans Affairs 1994; Dave has been the Director of all three entities since their inception.


Points covered include:
  • PTSD/Moral Injury
  • Traumatic Brain Injuries in Veterans
  • Initiative to recognize being a Veteran as another Vital Sign

Sunday, March 31, 2013

Lessons Learned In a Ten-Year Journey Through Childhood Cancer


Speaker:  Dr. Julia Hallisy -

Dr. Julia Hallisy, The Empowered Patient Coalition, obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor's degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy also received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since then, she has been in continuous private practice in San Francisco, California.

Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter's life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.

In 2008, Dr. Hallisy founded the non-profit organization The Empowered Patient Coalition and co- authored The Empowered Patient Guide to Hospital Care for Patients and Families. The organization provides an advocate directory, factsheets and checklists, SBAR communication tools for patients, pocket guides, a patient reporting survey and hospital and community training sessions on patient safety and advocacy issues.

During this session Dr. Hallisy describes her family's ten-year journey through childhood advocacy. She explains how a patient advocate would have helped them navigate a difficult path. Especially useful is an advocate's ability to help the family focus on their immediate goals as well as organizing and categorizing priorities.

Additional Resources

Related resources from Julia:
The Empowered Patient Decision Support App:
Report an adverse medical event:

Thursday, February 28, 2013

Ethical Wills – What You Have Learned Is As Valuable As What You Have Earned...


Speaker: Susan Turnbull

Susan Turnbull founded Personal Legacy Advisors in 2002 out of great respect for the ancient ethical will, and has become an internationally known advocate for non-binding personal legacy documents as a meaningful component of estate, financial and philanthropic planning.  A former journalist, she has ghostwritten and edited numerous ethical wills and personal histories, is the author of The Wealth of Your Life: A Step-by-Step Guide for Creating Your Ethical Will and co-author of Between Generations: A Five Step Guide for Creating an Expression of Donor Intent. She is also the creator of LifeLegacy Cards, prompts for insightful conversation and writing.

Susan is a graduate of Colby College and the parent of three young adult children. She and her husband live in greater Boston.

Your wealth and your legacy have both tangible and intangible dimensions.
During this session our speaker addressed the following topics:

  1. The definition and history of Ethical Wills
  2. Why creating an Ethical Will is a valuable experience
  3. How Ethical Wills can be implemented in your own lives
  4. How the concept of an Ethical Will can be introduced into your client experiences
Additional Resources

Wednesday, October 31, 2012

Medicare Choices: How to Decide


Speaker: Dianne Savastano -

The NAHAC Education Committee proudly presents Dianne Savastano, BSN, MBA, the Founder and President of Healthassist, a personal healthcare consultancy established in 2004 and based in Manchester-by-the-Sea, MA. Healthassist offers expert help in demystifying healthcare and medical insurance and offers services that help people of all ages navigate today's increasingly complex healthcare system. Dianne has over 30 years of healthcare experience and understands both the clinical and insurance perspectives. Before launching Healthassist, she worked as a nurse providing direct patient care, in hospital management, and in high-level positions in managed care, insurance, employee benefits and business consulting. Dianne was one of the founding members of NAHAC and currently serves on the board of directors as Treasurer.

As individuals approach the age of 65 and sign up for Medicare, they are often surprised and overwhelmed by the 20-40 choices available to them. Comparing one to another is a challenge.

The objectives for the teleconference session on "Medicare Choices" are:
  1. Gain a deeper understanding of how the options in Medicare evolved
  2. Understand what traditional Medicare covers and does not cover
  3. Learn the differences between Medicare Part A, B, C, D and Medicare supplemental/medigap insurance plans
  4. Identify preferences
  5. Make decisions if you remain employed after age 65
  6. Review your choices on an annual basis
Additional Resources: