Sunday, March 31, 2013

Lessons Learned In a Ten-Year Journey Through Childhood Cancer


Speaker:  Dr. Julia Hallisy -

Dr. Julia Hallisy, The Empowered Patient Coalition, obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor's degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy also received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since then, she has been in continuous private practice in San Francisco, California.

Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter's life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.

In 2008, Dr. Hallisy founded the non-profit organization The Empowered Patient Coalition and co- authored The Empowered Patient Guide to Hospital Care for Patients and Families. The organization provides an advocate directory, factsheets and checklists, SBAR communication tools for patients, pocket guides, a patient reporting survey and hospital and community training sessions on patient safety and advocacy issues.

During this session Dr. Hallisy describes her family's ten-year journey through childhood advocacy. She explains how a patient advocate would have helped them navigate a difficult path. Especially useful is an advocate's ability to help the family focus on their immediate goals as well as organizing and categorizing priorities.

Additional Resources

Related resources from Julia:
The Empowered Patient Decision Support App:
Report an adverse medical event: